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From The Socialist newspaper, 8 March 2017

Struggling to care against a backcloth of cuts

Cuts are forcing struggling families to pick up the slack

Cuts are forcing struggling families to pick up the slack   (Click to enlarge)

The following is an account of years of struggle by parents of a disabled child to secure the proper resources to meet their daughter's needs. A situation made more difficult by draconian cuts in funding local services.

Our story by John Morrow

When my daughter was first diagnosed with cancer and a one in ten million neurological disorder side effect, we were told our council house was unsuitable for adaption and exchanged to a house the authorities said was more suitable.

Her condition meant it became dangerous taking her up and down stairs so I contacted Occupational Therapy (OT) to start the adaptations. An OT person came out and took one look at the house and told us "sorry it cannot be adapted you will have to move" (we had spent 2,500 doing it up as it was a dump).

It took two more years to find a suitable house and then five months to adapt. For the first couple of years everything was great.

My daughter was given a bath seat, and a comfy chair. However, no thought was given to her growing out of these aids.

When she became ten her replacement chair would not fit in the lift. We kept her old chair in the lift and swapped chairs to get her upstairs as all lift adaptations were for a five year old.

Rejected

We were still using the same bath chair when she reached 13. An occupational therapist told us we needed an extension for a shower room, which the person put in writing, then denied saying it.

We endured six years of fighting the council for the shower room extension. The application was rejected.

We appealed and lost, then won after going to the ombudsman who said Gateshead council broke the rules in its appeals procedure. A council OT came around with an architect - but there were a series of fitting problems.

Relationships between us and the council became increasingly fraught. I was constantly lied to and started recording conversations, but was banned from doing this. This was extremely stressful.

Even once the work was finished we have had ongoing problems. They fitted a bedpan sluice instead of a sink to wash soiled clothes in. We were told it would be possible to use this, but when we asked for a demonstration of how, the penny dropped that it wasn't possible.

We understand that OTs are at the sharp end of council cutbacks. The situation is exhausting for carers of disabled children/adults. There needs to be a better understanding and more resources available to us.

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In The Socialist 8 March 2017:


Save our NHS!

Demo shows battle to save the NHS can be won


Socialist Party news and analysis

Fight the cuts: Demand no-cuts council budgets

One million workers on zero-hour contracts

Tories to dodge rulings against disability benefit cut

MPs take 1k raise

Aristocrats to hold byelection for one of their 92 reps

TUSC supports Irish MPs' call on Corbyn


Comments and reviews

Struggling to care against a backcloth of cuts

1987 Zeebrugge disaster

The Socialist inbox


International socialist news and analysis

Historic demonstration in Barcelona in support of refugees

Support the Jobstown defendants: Defend the right to public protest

Build a movement to defeat Trump!


Socialist Party workplace news

Second front in battle over driver-only operation opens on Northern Rail

Leaked document threatens jobs and conditions at Ford Bridgend

Bus drivers' strike: Huge anger at bosses' attacks

Deliveroo cedes ground in Brighton dispute

Striking for jobs and union recognition at Fujitsu

EHRC workers walk out

Workplace news in brief


Join the Socialist Party!

Millions protest - now join the Socialist Party to fight to change the world

Why I joined: "I am a Labour Party member and I recently decided to join the Socialist Party"

Why I joined: "In those 16 pages of the Socialist I found more sense and integrity than in the mainstream media"

Why I joined: "I began to feel really exploited and to think about why"

Why I joined: "I hope that more and more people are going to join the Socialist Party and the fight to end inequality"


Socialist Party reports and campaigns

'Anti-union law' charges against trees protesters dropped

Sheffielders call for a no-cuts 'people's budget'

Hands off our Jobcentre!

Greater Manchester: patients are people not guinea pigs!

Bradford: Anti-cuts lobby against poor-bashing budget

Mary Creagh should resign not remain


 

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Related links:

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Gateshead:

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