Join the Socialist Party Join us today!

Printable version Printable version

Facebook   Twitter

Link to this page: http://www.socialistparty.org.uk/issue/939/24853

From The Socialist newspaper, 8 March 2017

Struggling to care against a backcloth of cuts

Cuts are forcing struggling families to pick up the slack

Cuts are forcing struggling families to pick up the slack   (Click to enlarge)

The following is an account of years of struggle by parents of a disabled child to secure the proper resources to meet their daughter's needs. A situation made more difficult by draconian cuts in funding local services.

Our story by John Morrow

When my daughter was first diagnosed with cancer and a one in ten million neurological disorder side effect, we were told our council house was unsuitable for adaption and exchanged to a house the authorities said was more suitable.

Her condition meant it became dangerous taking her up and down stairs so I contacted Occupational Therapy (OT) to start the adaptations. An OT person came out and took one look at the house and told us "sorry it cannot be adapted you will have to move" (we had spent 2,500 doing it up as it was a dump).

It took two more years to find a suitable house and then five months to adapt. For the first couple of years everything was great.

My daughter was given a bath seat, and a comfy chair. However, no thought was given to her growing out of these aids.

When she became ten her replacement chair would not fit in the lift. We kept her old chair in the lift and swapped chairs to get her upstairs as all lift adaptations were for a five year old.

Rejected

We were still using the same bath chair when she reached 13. An occupational therapist told us we needed an extension for a shower room, which the person put in writing, then denied saying it.

We endured six years of fighting the council for the shower room extension. The application was rejected.

We appealed and lost, then won after going to the ombudsman who said Gateshead council broke the rules in its appeals procedure. A council OT came around with an architect - but there were a series of fitting problems.

Relationships between us and the council became increasingly fraught. I was constantly lied to and started recording conversations, but was banned from doing this. This was extremely stressful.

Even once the work was finished we have had ongoing problems. They fitted a bedpan sluice instead of a sink to wash soiled clothes in. We were told it would be possible to use this, but when we asked for a demonstration of how, the penny dropped that it wasn't possible.

We understand that OTs are at the sharp end of council cutbacks. The situation is exhausting for carers of disabled children/adults. There needs to be a better understanding and more resources available to us.

Why not click here to join the Socialist Party, or click here to donate to the Socialist Party.


In The Socialist 8 March 2017:


Save our NHS!

Demo shows battle to save the NHS can be won


Socialist Party news and analysis

Fight the cuts: Demand no-cuts council budgets

One million workers on zero-hour contracts

Tories to dodge rulings against disability benefit cut

MPs take 1k raise

Aristocrats to hold byelection for one of their 92 reps

TUSC supports Irish MPs' call on Corbyn


Comments and reviews

Struggling to care against a backcloth of cuts

1987 Zeebrugge disaster

The Socialist inbox


International socialist news and analysis

Historic demonstration in Barcelona in support of refugees

Support the Jobstown defendants: Defend the right to public protest

Build a movement to defeat Trump!


Socialist Party workplace news

Second front in battle over driver-only operation opens on Northern Rail

Leaked document threatens jobs and conditions at Ford Bridgend

Bus drivers' strike: Huge anger at bosses' attacks

Deliveroo cedes ground in Brighton dispute

Striking for jobs and union recognition at Fujitsu

EHRC workers walk out

Workplace news in brief


Join the Socialist Party!

Millions protest - now join the Socialist Party to fight to change the world

Why I joined: "I am a Labour Party member and I recently decided to join the Socialist Party"

Why I joined: "In those 16 pages of the Socialist I found more sense and integrity than in the mainstream media"

Why I joined: "I began to feel really exploited and to think about why"

Why I joined: "I hope that more and more people are going to join the Socialist Party and the fight to end inequality"


Socialist Party reports and campaigns

'Anti-union law' charges against trees protesters dropped

Sheffielders call for a no-cuts 'people's budget'

Hands off our Jobcentre!

Greater Manchester: patients are people not guinea pigs!

Bradford: Anti-cuts lobby against poor-bashing budget

Mary Creagh should resign not remain


 

Home   |   The Socialist 8 March 2017   |   Join the Socialist Party

Subscribe   |   Donate   |   Audio  |   PDF  |   ebook






Related links:

Disabled:

triangle'I'm writing this to tell you about the plight of disabled people'

triangleDisabled workers deserve a living wage

triangleFight like Poplar's women councillors to change the lives of family carers

triangleTories to dodge rulings against disability benefit cut

trianglePCS union pledges to fight Jobcentre job losses

Cuts:

triangleUnite against terror, racism and war

triangleTories scrap housing benefit for under-21s

triangleFight Tory attacks on women and children

triangleDerby TAs' strike suspended after new offer

Council:

triangleThe Socialist inbox

triangleWales

triangleThe need for a party that is against cuts in words and deeds

US:

triangleThem & Us

Bath:

triangleBath: behind the elegant walls

Parents:

triangleGlenfield heart unit: "Children will die" angry parents tell NHS England

Gateshead:

triangleSocialist Party members join disability rights week of action

Carers:

triangleNo to home seizures for care bills

Reviews and comments

Reviews and comments

24/3/17

Obituary

Obituary: Brenda Proctor 1950-2017

22/3/17

The Socialist

The Socialist inbox

22/3/17

Spain

Precise, visceral account of working class heroism

22/3/17

Disabled

'I'm writing this to tell you about the plight of disabled people'

22/3/17

Socialist Party

"After seeing the branch's effect in the community, I decided to join"

15/3/17

Nurses

'Nurses are angry and we are ready for action'

15/3/17

Disability

Disabled workers deserve a living wage

15/3/17

Women

Women's struggles reduced to perfume sales and career ladder

8/3/17

Disabled

Struggling to care against a backcloth of cuts

8/3/17

The Socialist

The Socialist inbox

8/3/17

Socialist Party

Why I joined: "I hope that more and more people are going to join the Socialist Party and the fight to end inequality"

8/3/17

Socialist Party

Why I joined: "I am a Labour Party member and I recently decided to join the Socialist Party"

8/3/17

Socialist

Why I joined: "I began to feel really exploited and to think about why"

8/3/17

Socialist Party

Why I joined: "In those 16 pages of the Socialist I found more sense and integrity than in the mainstream media"

1/3/17

Letters

The Socialist Inbox

triangleMore Reviews and comments articles...


Join the Socialist Party
Subscribe to Socialist Party publications
Donate to the Socialist Party

triangle23 Mar Jobstown Not Guilty: pics of London protest

triangle23 Mar Unite against terror, racism and war

triangle22 Mar Northern Ireland: divisive election a warning to the workers' movement

triangle22 Mar Battle steps up in general secretary election before start of voting

triangle22 Mar Tory splits brought to the surface - Corbyn must go on the attack

triangle21 Mar CPSA to PCS: Fighting the 'Moderates' and building a fighting union

triangle20 Mar March against racism: Refugee Rights has lively bloc

More ...

triangle28 Mar Bristol North Socialist Party: The French elections

triangle28 Mar Manchester Socialist Party: The history of the CWI

triangle30 Mar North London Socialist Party: Stop the education cuts

triangle30 Mar Bradford Socialist Party: The French election campaign

More ...

Socialist Party Facebook page
Socialist Party on Twitter
Visit us on Youtube

Archive

Archives:

March 2017

February 2017

January 2017

2016

2015

2014

2013

2012

2011

2010

2009

2008

2007

2006

2005

2004

2003

2002

2001

2000

1999

Legal

SP RSS feed RSS

Platform setting: = No platform choice